Future of
Patient Data

Insights from Multiple Expert
Discussions Around the World

Overview

We are witnessing a growing revolution around the provision of healthcare. Much is being driven by the proliferation of medical data and the technology that supports this. As the pressures on healthcare providers continue to escalate, the better collection, management and use of more patient-specific information provides a significant opportunity for innovation and change. The Future Agenda team made this, the Future of Patient Data, the focus of our major Open Foresight project for 2017/18 – 12 discussions across 11 countries, gathering views from over 300 experts.

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This report shares the findings from the Future of Patient Data research project. It highlights several important emerging issues that are the source of major differences of opinion around the world. These include how to best accommodate rising data sovereignty concerns, the privatisation of health information and the growing value of health data. Some of the challenges and opportunities are technical in nature, but many are concerned with different ethical, philosophical and cultural approaches to health and how we treat the sick in society.

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Presentation

This is an accompanying presentation used for public conferences and to kick off briefings within organisations. It provides a summary of the research and highlights some of the key insights. It is available to download both as a PDF and also to view on SlideShare.

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The Danish Perspective

In June 2018 we ran the first of several follow-on workshops exploring key implications at a country level. Undertaken in Copenhagen in partnership with DTU Business, this is the report from this discussion exploring the future implications for Denmark.

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Partners

Locations and Key Insights

Insights world map Map marker

Level of Privacy Regulation
DLA Piper

  • Heavy
  • Robust
  • Moderate
  • Limited

Frankfurt

25.01.18

Top 3 challenges

  1. Expanding Data Set
  2. Combining Data Sets
  3. Regulation

Top 3 opportunities

  1. Data Marketplaces
  2. Personalisation
  3. Artificial Intelligence

Top 3 future issues

  1. Informed Consent
  2. Data Sovereignty
  3. Inequality

San Francisco

19.01.2018

Top 3 challenges

  1. Integration of Data
  2. Data Quality
  3. Unstructured Data

Top 3 opportunities

  1. Individualized Medicine
  2. Artificial Intelligence
  3. Data Marketplace

Top 3 future issues

  1. Privatisation of Health data
  2. New Business Models
  3. Value of Health Data

Boston

17.01.18

Top 3 challenges

  1. Getting Closer to the Patient
  2. Combining Data Sets
  3. Data Gaps

Top 3 opportunities

  1. Genetic Profiling
  2. Artificial Intelligence
  3. Proxy Data

Top 3 future issues

  1. Inequality
  2. Standardised Measures
  3. Privatisation of Health data

Toronto

16.01.2018

Top 3 challenges

  1. Data Ownership
  2. Ulterior Motives
  3. Trust

Top 3 opportunities

  1. Data Marketplaces
  2. Artificial Intelligence
  3. Personalisation

Top 3 future issues

  1. New Business Models
  2. Privatisation of Health Data
  3. Informed Consent

London

14.12.17

Top 3 challenges

  1. Combining Data Sets
  2. Trust
  3. Linkability of Open Data

Top 3 opportunities

  1. Embedded AI
  2. Getting Closer to the Patient
  3. Predictive Analysis

Top 3 future issues

  1. New Business Models
  2. Standardised Measures
  3. Inequality

Mumbai

23.11.17

Top 3 challenges

  1. Data Quality
  2. Ulterior Motives
  3. Data Ownership

Top 3 opportunities

  1. Data Marketplaces
  2. India Setting Standards
  3. Artificial Intelligence

Top 3 future issues

  1. Informed Consent
  2. New Models
  3. Inequality

Sydney

15.11.17

Top 3 challenges

  1. Linkability of Open Data
  2. Data Gaps
  3. Ulterior Motives

Top 3 opportunities

  1. Genetic Profiling
  2. Predictive Analysis
  3. Data Marketplaces

Top 3 future issues

  1. New Models
  2. Informed Consent
  3. New Entrants

Singapore

13.11.17

Top 3 challenges

  1. Regulation
  2. Combining Data Sets
  3. Getting Closer to the Patient

Top 3 opportunities

  1. Artificial Intelligence
  2. Individual Custodianship
  3. Personalisation

Top 3 future issues

  1. Data Sovereignty
  2. Standardised Measures
  3. Value of Health Data

Brussels

09.11.17

Top 3 challenges

  1. Ulterior Motives
  2. Resistance from HCPs
  3. Trust

Top 3 opportunities

  1. Artificial Intelligence
  2. New Business Models
  3. Mental Health

Top 3 future issues

  1. Data Sovereignty
  2. Patient Empowerment
  3. Data Marketplaces

Oslo

30.10.17

Top 3 challenges

  1. Combining Data Sets
  2. Getting Closer to the Patient
  3. Expanding Set of Data

Top 3 opportunities

  1. Predictive Analysis
  2. Personalisation
  3. Artificial Intelligence

Top 3 future issues

  1. Standardised Measures
  2. Inequality
  3. Global Data Sharing

Johannesburg

10.10.17

Top 3 challenges

  1. Combining Data Sets
  2. Digital Skills
  3. Resistance from HCPs

Top 3 opportunities

  1. Personal Data Sharing
  2. Genetic Profiling
  3. Artificial Intelligence

Top 3 future issues

  1. Inequality
  2. Privatization of Health Data
  3. Data Sovereignty

Dubai

27.09.17

Top 3 challenges

  1. Data Gaps
  2. Infrastructure
  3. Digital Skills

Top 3 opportunities

  1. Predictive Analysis
  2. Artificial Intelligence
  3. Genetic Profiling

Top 3 future issues

  1. Standardised Measures
  2. Mental Health
  3. Ulterior Motives

Current Healthcare Expenditure as a %GDP (2015)

CountryTotalGovtPrivate
Australia9.46.52.9
Belgium10.58.61.8
Canada10.47.72.8
Germany11.29.41.7
India3.91.02.9
Norway10.08.51.5
Singapore4.32.22.0
South Africa8.04.43.6
UAE3.52.51.0
UK9.97.91.9
USA16.88.58.4

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About Future Agenda

Future Agenda runs the world’s largest open foresight programme and provides strategic advice to leading organisations globally. In 2010 and 2015 we undertook major worldwide research leading hundreds of expert workshops across over 20 topics. The insights from these discussions have been shared online and in two major publications – 'The World in 2020' and ' The World in 2025 '.

Each year, the Future Agenda team undertakes in-depth global open foresight research projects on key themes of interest. In 2016 the focus was the Future of Cities . In 2017 it was the Future of Philanthropy and the Future of Patient Data . For 2018 the focus was the Future Value of Data and the Future of Digital Identity. Alongside Autonomous Vehicles, other topics for 2019 are the Future of Digital Education and the Future of Land Use. All our research is openly shared under the Creative Commons Non-Commercial license.